麻豆社

References - Unlocking the promise of UK health data

  1. Nuffield Trust, Will technology save the NHS 拢10 billion?, 30 June 2015
  2. Medicines Discovery Catapult and ABPI, Use of health data by the life sciences industry: a UK perspective, October 2019
  3. NHS Confederation, NHS statistics, facts and figures, accessed 2 July 2019
  4. NHS England, NHS Long Term Plan, January 2019
  5. European Medicines Agency, Human medicines: highlights of 2018, 4 January 2019
  6. EvaluatePharma, World Preview 2019, Outlook to 2024, June 2019
  7. OHE, The R&D cost of a new medicine, December 2012
  8. EY, Realising the value of health care data: a framework for the future, July 2019, unless otherwise stated
  9. GSK, GSK and 23andMe sign agreement to leverage genetic insights for the development of novel medicines, 25 July 2018
  10. Reuters, Roche in $1 billion-plus Foundation Medicine deal to boost cancer efforts, 12 January 2015
  11. Roche, Media Release, 19 June 2018
  12. Amgen, Intermountain Healthcare and deCODE genetics Launch Groundbreaking DNA Study of 500,000 People to Find New Links Between Genetics and Disease, 11 June 2019
  13. Life Sciences Industrial Strategy, 30 August 2017
  14. National Institute for Health Research, Impact and value report, 12 July 2019
  15. Office for Life Sciences, Life Science Competitiveness Indicators, June 2019
  16. NESTA, All together now: Improving cross-sector collaboration in the UK biomedical industry, March 2011
  17. ABPI, Big data road map, 21 November 2013
  18. Life Sciences Industrial Strategy, 30 August 2017
  19. OpenDataInstitute, Who do we trust with personal data?, 5 July 2018
  20. HRA, Sharing anonymised patient-level data where there is a mixed public and private level benefit 鈥� a new report, 1 September 2019
  21. tranSMART Foundation, Our history; accessed 29 July 2019
  22. EFPIA and PhRMA, Principles for Responsible Clinical Trial Data Sharing Our Commitment to Patients and Researchers, July 2013
  23. Understanding Patient Data, Public attitudes to patient data use: a summary of existing research, July 2018
  24. AMRC, Pioneering Partnerships 2019: Putting Patients First; accessed 29 July 2019
  25. ABPI, Working with patients and patient organisations, June 2019
  26. See for example UseMyData鈥檚 work in Understanding Patient Data, Guest blog: Patient data saves lives, let鈥檚 acknowledge it, 18 September 2017
  27. National Voices, About us, accessed 24 September 2019
  28. CSO Online, The 18 biggest data breaches of the 21st century, 20 December 2018
  29. BBC, Care.data: How did it go so wrong?, 19 February 2014
  30. NHS Digital, National Data Opt Out 鈥� March 2019, 19 March 2019
  31. DHSC, Dame Fiona Caldicott appointed as the first statutory National Data Guardian for Health and Social Care, 11 March 2019
  32. The Royal Society, Protecting privacy in practice: the current use, development and limits of Privacy Enhancing Technologies in data analysis, 26 March 2019
  33. IpsosMORI and the Wellcome Trust, The One-Way Mirror: Public attitudes to commercial access to health data, March 2016
  34. HDR UK, Principles for participation, May 2019
  35. Department of Health and Social Care, Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, 15 July 2019
  36. HDR UK, One Institute Strategy 2019-20, 9 April 2019
  37. Genomics England, Secretary of State for Health and Social Care announces ambition to sequence 5 million genomes within five years, 2 October 2018
  38. Genomics England, Wales joins the 100,000 Genomes Project, 16 February 2018
  39. Genomics England, Industry collaboration already benefiting participants of 100,000 Genomes Project, 17 April 2019
  40. University of Manchester, BSRBR-RA study, Monitoring the long term safety of drugs to treat rheumatoid arthritis, accessed 3 July 2019
  41. University of Glasgow, Scotland and UOFG at forefront of global genomics initiative, 26 October 2016
  42. Clinical Practice Research Datalink, accessed 2 July 2019
  43. Genomics England, The 100,000 Genomes Project, accessed 19 July 2019
  44. NHS Digital, Hospital Episode Statistics; accessed 29 July 2019
  45. Biobank, About UK Biobank, accessed 2 July 2019
  46. NCRAS, About the National Cancer Registration and Analytics Service; accessed 19 July 2019
  47. ScotPHO, Scottish Cancer Registry, accessed 30 August 2019
  48. NICOR, National Cardiac Audit Programme Report 2016/17, accessed 30 August 2019
  49. SACT, About SACT, accessed 30 August 2019
  50. Medicines Discovery Catapult and BioIndustry Association, State of the Discovery Nation, 2019
  51. Information shared with the 麻豆社from Health Data Research UK
  52. Forbes, The Deeply Human Core Of Roche鈥檚 $2.1 Billion Tech Acquisition -- And Why It Made It, 18 February 2018
  53. Case studies provided in confidence to the ABPI
  54. HDR UK, UK Health Data Research Alliance, accessed 6 December 2019
  55. Health Education England, Preparing the healthcare workforce to deliver the digital future, February 2019
  56. Data provided in confidence to the ABPI, unless otherwise stated
  57. IMS case study, referenced in Life Sciences Industrial Strategy, 30 August 2017
  58. NHS England, NHS aims to be a world leader in artificial intelligence and machine learning within 5 years, 5 June 2019
  59. DHSC, Health Secretary announces 拢250 million investment in artificial intelligence, 8 August 2019
  60. IBM, Breaking the 80/20 rule: How data catalogs transform data scientists鈥� productivity, 23 August 2017
  61. Data provided in confidence to the ABPI
  62. Data provided in confidence to the 麻豆社DHSC, NHS challenged to go paperless by 2018, 16 January 2013
  63. NHS Digital, National Information Board: Paperless 2020, accessed 2 July 2019
  64. HDR UK, Sprint Exemplar Projects; accessed 5 August 2019
  65. University of Leicester, Innovative healthcare project to link patient data receives government funding, 4 February 2019
  66. HDR UK, Digital Innovation Hub Programme prospectus guidance notes for applicants, May 2019
  67. ISD Scotland, eDRIS: FAQs; accessed 31 July 2019
  68. HDR UK, Gateway; accessed 5 August 2019
  69. Case studies provided in confidence to the ABPI
  70. As stated in NICE鈥檚 鈥楽tatement of Intent; accessed through NICE, Consultation on the data and analytics statement of intent, 13 June 2019
  71. ABPI, Worldwide pharmaceutical company R&D expenditure by country; accessed 9 August 2019
  72. PharmaTimes, NICE explores extending use of real world data to inform guidance, 27 June 2019
  73. HM Government, Life Sciences Sector Deal 2, 2018
  74. 2014/15 figures; cited in section 6, National Institute for Health Research, Impact and value report, 12 July 2019
  75. Financial Times, Drayson floats medical AI group Sensyne Health on Aim, 14 August 2018
  76. Sensyne Health, Our company; accessed 9 August 2019

Related content in this section:

Last modified: 20 September 2023

Last reviewed: 20 September 2023